Abstracts

Rationale: Epilepsy is one of the commonest co-morbid conditions seen in children and young people (CYP) with neurodisabilities. The optimal management of this important condition is confounded by the co-existence of non-epileptic movements and relative non-compliance with investigations. The purpose of this clinical audit was to assess the epilepsy care provided using an adaptation of the UK Epilepsy 12 national audit [1]. Methods: This was a retrospective chart review. A data collection sheet was devised to allow collection of anonymized clinical information from each child's school health record and electronic hospital record. 16 performance indicators (PIs) were devised, based on Epilepsy12 methodology with additional information relevant to CYP with neurodisabilities. Inclusion criteria were children attending one of three special schools for CYP with learning disabilities, diagnosed with epilepsy, resident in the area for past 5 years. Exclusion criteria were all seizure episodes were febrile; all seizures were acute symptomatic. Simple descriptive statistics were used. Results: To date the charts of 19/84 eligible patients have been reviewed. 18/19 had at least 1 neurodisability diagnosis; 14/19 had 2 or more neurodisability diagnoses. PIs that scored well included seizure classification, written seizure care plan, and input from a paediatrician with expertise in epilepsy (all 19/19). PIs highlighting areas for improvement were the discussion of risk of dying (1/19), including the risk of SUDEP (1/19) and epilepsy syndrome classification (5/19). Conclusions: Our audit identified areas of high quality practice and areas for improvement in practice, in particular around documentation of important discussions such as the risk of death and SUDEP. The clinical audit is on-going, and further data will be collected and analysed in the next 6 months. Reference [1] http://www.rcpch.ac.uk/improving-child-health/quality-improvement-and-clinical-audit/epilepsy12-national-audit/national-rep (accessed 04-June-2016). Funding: There was no specific funding for this abstract.