Epilepsy Leadership Council

The Epilepsy Leadership Council (ELC) is an organization of nearly 50 professional organizations, disease-specific and patient advocacy organizations, governmental agencies, and professional societies that focus on improving the lives of people with epilepsy.  

Member organizations work together to identify shared needs, monitor advances in epilepsy, share and disseminate information, and create a united voice for advancing research, care, and education.

The group focuses on joint priorities and action that benefit from:

  • Collaboration across organizations, with a focus on activities that will be most successful if done together
  • Broad representation of the epilepsies
  • Creativity and capacity to execute that comes from shared ideas and resources
  • Elimination of competing or duplicative epilepsy-related activities


AES is a member of and serves as the fiscal agent for the ELC and provides administrative and staff support.