Rationale:
The Epilepsy Learning Healthcare System (ELHS) is a multicenter network to improve epilepsy outcomes. The aim of this effort was to assess measurement of standardized epilepsy outcomes at one practice site of ELHS.
Method:
A standardized Epilepsy Outcomes Form (EOF) adapted from the ELHS network was used to record seizure outcomes. Through Quality Improvement (QI) methods, we assessed improvement in the use of the EOF at follow-up visits. The EOF captured the date of the last seizure, frequency of seizures, effects of the seizures and medications on daily activities, Emergency Department visits, and hospitalizations. All data were entered into a REDCap database approved by the IRB for QI.
Results:
The initial completion rate of the EOF was 29% of patient visits. Through PDSA cycles over 3 months, we achieved an EOF completion rate of 90%. Analysis of 849 follow-up visits revealed challenges to completion of individual items. Missing or uncertainty on data elements combined ranged from 20% to 50% with the highest rates for the effects of seizures and medications on daily activities.
Conclusion:
Utilizing QI methodology, we achieved an overall 90% rate of EOF completion to measure epilepsy outcomes, but individual items pose challenges to full completion of the form.
Funding:
:None
FIGURES
Figure 1