MEW Network Self-management Program Characteristics and Lessons Learned Through the RE-AIM Framework
Abstract number :
2.391
Submission category :
17. Public Health
Year :
2022
Submission ID :
2204514
Source :
www.aesnet.org
Presentation date :
12/4/2022 12:00:00 PM
Published date :
Nov 22, 2022, 05:25 AM
Authors :
Cam Escoffery, PhD, MPH – Rollins School of Public Health; Archna Patel, MPH – Rollins School of Public Health; Molly Anderson, MPH – Rollins School of Public Health; Jerik Leung, MPH – Rollins School of Public Health; Robin McGee, PhD – Rollins School of Public Health; Martha Sajatovic, MD – Case Western Reserve University School of Medicine; Erica Johnson, PhD – University of Washington; Barbara Jobst, MD – Dartmouth-Hitchcock Medical Center; Elaine Kiriakopoulos, PhD – Dartmouth-Hitchcock Medical Center; Ross Shegog, PhD – University of Texas School of Public Health; Robert Fraser, PhD – University of Washington; Rakale Quarells, PhD – Morehouse School of Medicine
Rationale: The promotion of evidence-based self-management support for people living with chronic conditions such as epilepsy is a public health priority. Epilepsy self-management encompasses three general areas: (1) treatment management, (2) seizure management, and (3) lifestyle, mood, and epilepsy care management. Interventions focusing on self-management have increased quality of life and adherence to treatment. The purpose of this study is to assess and synthesize MEW Network program implementation experiences using the RE-AIM framework.
Methods: The study data were derived from a MEW Network (MEW) Self-management Program Survey conducted with currently active MEW researchers through an online survey and review of program publications and archival documents. Survey data were obtained from either the principal investigator or study team for the UPLIFT, HOBSCOTCH, SMART, MINDSET, TIME, and PACES programs. The survey questionnaire included 6 sections consisting of 68 questions and focused on the RE-AIM dimensions and respondent characteristics. The RE-AIM dimensions included: (1) Reach, (2) Effectiveness, (3) Adoption (type of adopting sites), (4) Implementation, and (5) Maintenance.
Results: Across MEW programs participation (44-120 individuals) and delivery methods (community, clinic, or asynchronous; group or individual) ranged, with most programs predominantly reaching White (30.1%-89%) or African American participants (6%-69.9%. Common program outcome measures included clinical outcomes (e.g., depression, quality of life, seizure frequency), and self-management behaviors (e.g., problem-solving; self-efficacy). Initial efficacy trials suggested programs were effective in changing some of their targeted outcomes. Most programs were implemented in clinical settings and several programs are being replicated or adapted to different geographical or demographic (e.g., race, age) settings (adoption). Program delivery methods involved a mixture of program staff, peer educators, and researchers. Implementation enabling factors included partnerships with local epilepsy organizations and inclusion of peer educators. Retention rates average was 83.6%. Internal barriers included recruitment and lack of sufficient resources for participants. External barriers included clinical staff buy-in, staffing, and insufficient funding for support staff. All programs offered next steps to sustain their initiatives such as packaging their programs, initiating adoption with regional organizations, and supporting organizational readiness (maintenance). Dissemination efforts included provision of training and technical assistance and partnering with national organizations on grant opportunities to scale-up existing programs.
Conclusions: These data showcase the impact of the MEW self-management interventions on health and quality of life. These programs are employing training, readiness assessment, technical assistance, and development of partnerships to increase program scalability. The lessons learned are critical for other interventions attempting to increase translation of their programs to other settings.
Funding: Centers for Disease Control and Prevention, SIP 19-002, U48 DP006377
Public Health