PATIENTSLIKEME® EPILEPSY COMMUNITY: FACTORS AFFECTING QUALITY OF LIFE
Abstract number :
2.209
Submission category :
7. Antiepileptic Drugs
Year :
2012
Submission ID :
16105
Source :
www.aesnet.org
Presentation date :
11/30/2012 12:00:00 AM
Published date :
Sep 6, 2012, 12:16 PM
Authors :
C. de la Loge, S. Dimova, T. Durgin, G. Phillips, K. Mueller, C. Lafosse, P. Wicks
Rationale: The PatientsLikeMe Epilepsy Community is a free online platform developed in partnership with UCB and launched in January 2010. Analyses of previous data exports (March 20101, September 20102, and May 20113) provided insights into users' characteristics and experiences with epilepsy. This November 2011 data export analysis assessed the impact of epilepsy on patients' lives by describing symptoms and perceived side effects and identifying predictors of poor health-related quality of life (HRQoL). Methods: The PatientsLikeMe platform allows patients with epilepsy to record, monitor, and share their sociodemographic and clinical characteristics (including seizure frequency, symptoms, treatments, and perceived side effects) and to complete Patient Reported Outcomes (PRO) instruments (e.g. QOLIE-31/P). Multivariate logistic regressions were performed to identify variables associated with poor HRQoL (
Antiepileptic Drugs