Pediatric to Adult Transition Care Gaps for Youth with Epilepsy with Comorbid Intellectual or Developmental Disability
Abstract number :
3.376
Submission category :
13. Health Services (Delivery of Care, Access to Care, Health Care Models)
Year :
2017
Submission ID :
349551
Source :
www.aesnet.org
Presentation date :
12/4/2017 12:57:36 PM
Published date :
Nov 20, 2017, 11:02 AM
Authors :
Frances Barry, University of California Los Angeles; Alice Kuo, University of California Los Angeles; Kelly G. Knupp, University of Colorado Anschutz Medical Campus; Cornelia Drees, University of Colorado, Denver; and Christine Baca, University of Colorad
Rationale: A substantial proportion of youth with epilepsy continue to have active seizures, require ongoing treatment with anti-seizure medications or have significant epilepsy related comorbidity that requires ongoing adult epilepsy care. Because youth with intellectual and developmental disability (ID/DD) may have different transitional care needs compared to those without, we examined receipt of transitional care for youth with epilepsy and youth with epilepsy with comorbid ID/DD compared to youth without epilepsy. Methods: We analyzed data for the 2009-2010 National Survey of Children with Special Health Care Needs, a nationally representative sample with 17114 parent respondents of youth ages 12-17 with special health care needs (any medical, behavioral or other health condition that has lasted or is expected to last 12 months or more). Using chi-square tests, we compared receipt of transitional (pediatric to adult), specialty, and mental health care services for youth with current epilepsy (YWE) or “epilepsy plus” (YWEP; epilepsy with comorbid intellectual or developmental disability) compared to youth with special health care needs without epilepsy (YWOE). Sample weights were used to reflect population totals. Results: 519 (3.1%; weighted mean age 14.4 years) YWE, 189 (1.2%; weighted mean age 14.3 years) YWEP and 16570 (96.8%; weight mean age 14.5 years) YWOE were examined. No differences were identified in age, gender, race/ethnicity, educational attainment and metropolitan residence between YWE or YWEP compared to YWOE, although differences by insurance type were identified; YWE and YWEP were more likely to have public insurance and less likely to have private insurance compared to YWOE (p Conclusions: While over two-thirds of YWE have transitional care gaps (did not receive care), such transition gaps are most profound for YWEP with nearly 90% not receiving components of necessary transitional care. Future research is needed to delineate whether sociodemographic or medical and psychiatric comorbidities are associated with transition care gaps. With this information, new transition care models to care for YWE can be developed. Funding: American Epilepsy Society and Epilepsy Foundation of American (PI - Baca)
Health Services