Preferred Practices for Cluster Seizures: HCPs, Care Partners and Patients
Abstract number :
1.21
Submission category :
4. Clinical Epilepsy / 4B. Clinical Diagnosis
Year :
2021
Submission ID :
1826375
Source :
www.aesnet.org
Presentation date :
12/4/2021 12:00:00 PM
Published date :
Nov 22, 2021, 06:53 AM
Authors :
Nancy Santilli, RN, NP, MN, FAAN - Santilli Global, LLC; Jeffrey Buchhalter, MD, Ph.D - Consultant, Buchhalter Consulting PLLC; Jaqueline French, MD - Professor, NYU Grossman School of Medicine; Brian Gilchrist, Ph.D. - Statistician, Epilepsy Foundation; Lawrence Hirsch, MD - Professor, Department of Neurology, Yale Comprehensive Epilepsy Program; Patty Osborne Shafer, RN, MN, FAES - Consultant, Osborne Health Consulting
Rationale: Episodes of frequent seizure activity represent an increase in seizures occurring over a specific period of time, that is distinct from a patient’s usual seizure pattern. Frequent episodes of seizures are often referred to as clusters, acute repetitive, or serial seizures. Haut et al (1999), estimated 5% of the nearly 3.5 M people in the US with active epilepsy experience these episodes. While Detyniecki et al (2018), in a single site prospective study (n=300), reported that more than a third of adults with uncontrolled epilepsy have clusters. Patients with episodes of frequent seizure activity have a significantly higher risk of status epilepticus (SE) vs patients without episodes (P < 0.002). Yet there has been a lack of data regarding how to assess, treat and educate people with epilepsy (PWE). Buchhalter et al (2021) presented data from an expert consensus process on RT. Further evaluation of this data provides insights for how these recommendations could be used.
Clinical Epilepsy