Authors :
Presenting Author: Sandra Valeria Valle Suárez, PhD – UMAE, Hospital de pediatría CMNO.
Alma Maritza Huerta Hurtado, PhD – Doctor attached to the pediatric neurology department, Pediatric neurology, UMAE, Hospital de pediatría, CMNO; María Fernanda Rosas de Silva, PhD – Second year resident of pediatric cardiology, UMAE, Hospital de pediatría, CMNO; Cecilia Colunga Rodriguez, PhD – UMAE, Hospital de pediatría CMNO
Rationale:
This study aims to describe the quality of life in patients with drug-resistant epilepsy.
Methods:
A descriptive cross sectional study was performed. We applied the questionary “pediatrics quality of life” (PedsQL) to 62 pediatric patients with drug-resistant epilepsy at Unidad Médica de Alta Especialidad, Hospital de Pediatría, Centro Médico Nacional de Occidente (CMNO).
Results:
Female-male ratio: 1:1.3. Most of them are school age, without academic degree, in middle socioeconomic status, without neurodevelopment delay, the majority of them with a motor scale assessment of I according to GMFSC. The main causes were both genetical and structural. The most common side effects of medications were sleep disorders. Most of them take three antiepileptic drugs.
The lowest score in PedsQL was 2 and 90 was the highest. The mean was 44.83, the median was 44.09 representing a poor quality of life in our patients with drug-resistant epilepsy, presenting a 23.02 standard deviation affecting globally all parts. Most of them report poor quality of life, then followed by both good and regular quality of life and just two patients refer having an excellent quality of live.
Conclusions:
Quality of life in patients with drug-resistant epilepsy at UMAE CMNO is compromised. The most part of patients report having poor quality of life. The most affected aspect is the psychosocial, and within this, the emotional. The different variables of severity of epilepsy (frequency of seizures, number of antiepileptic drugs taken, cognitive alterations) contribute worsening the quality of life.
Funding: N/A