Temporal Trends in Representation of Minoritized Populations in the Studies Presented at National Epilepsy Meetings
Abstract number :
2.346
Submission category :
13. Health Services (Delivery of Care, Access to Care, Health Care Models)
Year :
2022
Submission ID :
2204265
Source :
www.aesnet.org
Presentation date :
12/4/2022 12:00:00 PM
Published date :
Nov 22, 2022, 05:24 AM
Authors :
Roohi Katyal, MD – Louisiana State University Health Shreveport; Jennifer Pritchard, MD – University of Maryland Medical Center; Jennifer Hopp, MD – University of Maryland Medical Center; Tasleema Khan, MD – University of Maryland Medical Center; Megan Margiotta, MD – University of Maryland Medical Center; Stephanie Chen, MD – University of Maryland Medical Center; Bahareh Sianati, MD – University of Maryland Medical Center; Camilo Gutierrez, MD – University of Maryland Medical Center
This abstract has been invited to present during the Broadening Representation Inclusion and Diversity by Growing Equity (BRIDGE) poster session
Rationale: Epilepsy research has been found to have a significant lack of reporting of race and ethnicity with little to no data examining the trends in reporting of health disparities at national epilepsy meetings. The aim of this study was to assess the changes in the representation of various ethnicities/races and minoritized populations over the last two decades in studies presented at American Epilepsy Society (AES) meetings.
Methods: We queried the online abstracts database of American Epilepsy Society from 2000 until 2021 for use of the following keywords in abstracts’ text: race, ethnicity, Black, African American, Hispanic, Caucasian (antiquated term), transgender, disparities, socioeconomic status, age, and gender. Age and gender were considered control groups. We evaluated the frequency of studies analyzing FACETS (fear, access to care, communication barriers, education, trust, social support, and physician bias) from 2000 to 2021. We compared differences in reporting before and after 2013, the year signifying the beginning of the "Black Lives Matter" movement.
Results: The total number of abstracts published from 2000 to 2021 were 24495. A rising trend was seen in the reporting of race (0.21% in 2000 to 2.06% in 2021), ethnicity (0.42% in 2000 to 2.06% in 2021), disparities (0.00% in 2000 to 1.54% in 2021), Black (0.21% in 2000 to 1.40% in 2021) and Hispanic populations (0.21% in 2000 to 1.40% in 2021), and socioeconomic status (0.11% in 2000 to 0.96% in 2021) (Figure 1). There is minimal reporting of transgender population (0.09% in 2009 and then 0.07% in 2021). Comparing differences in reporting before and after 2013, significant differences were noted in reporting for ethnicity (p=0.005), Black population (p=0.011), Hispanic population (p=0.0006), and disparities (p=0.016). There was no significant difference in reporting of race, socioeconomic status, transgender, Caucasian, age, and gender. A rising trend was also observed in the analysis of FACETS (18% in 2000 to 49% in 2021) (Figure 2).
Conclusions: In the last 22 years, there has been an increase in reporting of race, ethnicities, disparities, and minoritized populations. Overall reporting and assessment of disparities continues to remain low. There is a significant dearth of representation of transgender population at the level of national epilepsy meetings. Our results provide insight into the current course of research/analysis of health disparities in epilepsy. We identify a need for targeted research to improve representation and care of all minoritized populations with epilepsy.
Funding: None
Health Services (Delivery of Care, Access to Care, Health Care Models)