Abstracts

RATIONALE: Vagus Nerve Stimulation (VNS)is a unique treatment for epilepsy. Limited research is available on subjective issues relating to patients and families. The purpose of this research was to gain insight into the self-reported experience of a group of patients living with VNS. METHODS: This research was designed as a pilot project to guide future qualitative analysis. A sample of volunteer participants (N=11) were interviewed for 1-2 sessions, approximately six months post-VNS placement. The phenomenological method was chosen to record subjective expressions. Taped and transcribed interviews were coded for similarities using the constant comparative method. A qualitative computer program was used for data storage, retrieval, and analysis. Biographical data was included. An open-ended question guide was designed to elicit issues concerning pre and post-operative experiences. RESULTS: Data analysis identified similarities in participants' perspectives during the progression through common phases of adjustment. Prior to surgery, patients expressed concern and worry. This most difficult stage was characterized by extensive delay due to family ambivalence concerning the procedure. During hospitalization, patients reported acute awareness of the sensation of a mechanical presence. The next phase required the integration of the new technology into home life. A variety of coping methods were found to be utilized as means to accept intrusive aspects, disappointments, or frustrations. Most patients developed security, confidence, peace of mind, and a positive adjustment over time. CONCLUSIONS: This research study highlights the unique experience of adjusting to life with VNS technology. It additionally provides the foundation for further study of patient and family anticipatory guidance. Nursing intervention should plan for a projected sequence of successful VNS adaptation and integration. Supported by: Dean's Grant, New York University, School of Education