Translation of MINDSETPlus into Clinical Practice: Results of Clinical Feasibility Testing of Web-Based Epilepsy Self-Management Decision Support Tool
Abstract number :
3.08
Submission category :
2. Translational Research / 2B. Devices, Technologies, Stem Cells
Year :
2023
Submission ID :
797
Source :
www.aesnet.org
Presentation date :
12/4/2023 12:00:00 AM
Published date :
Authors :
Presenting Author: David Labiner, MD – The University of Arizona
Refugio Sepulveda, PhD, MPH, MPA – Assistant Research Professor, Public Health/ Neurology, The University of Arizona; Robert Addy, PhD – Faculty Associate, School of Public Health, University of Texas Houston; Kimberly Martin, LVN – Assistant Director, Epilepsy Foundation Central & South Texas; Katarzyna Czerniak, MLA, MPH – Graduate Research Assistant, School of Public Health, University of Texas Houston; Alejandra García Quintana, DDS, MPH – Graduate Research Assistant, School of Public Health, University of Texas Houston; Ross Shegog, PhD – Professor, School of Public Health, University of Texas Houston
Rationale:
Epilepsy self-management (ESM) helps people with epilepsy (PWE) control their seizure frequency, increase their self-confidence, and better cope with their disease. Despite advances in the field, web-based interventions for ESM are still limited. Web-based applications have the potential to combine the tailored approach of face-to-face clinical interventions with the scalability of public health interventions. MINDSETPlus was redesigned as an internet accessible, responsive cross-platform version of MINDSET with inclusion of decision-support algorithms to provide tailored recommendations on appropriate MEW programs and prioritized social determinants for PWE. The purpose of this study is to describe the feasibility testing of the expanded web-based version of MINDSETPlus in Arizona and Texas.
Methods:
The feasibility study was conducted from March 2022 through July 2022 with a sample of patients (n=7) at five neurology clinics in Texas and Arizona during one regular clinic visit. Patients completed MINDSETPlus before their scheduled clinic visit and discussed their action plan with their healthcare provider. A feasibility rating scale and exit interview were used to collect feasibility data after each visit.
Results:
Results indicate MINDSETPlus feasibility for use in the following: 1) identifying S-M issues across several domains; 2) selecting and assessing confidence in tailored S-M goals/strategies for improvement; 3) identifying social determinants; 4) discussing SM issues/goals/strategies/confidence with an HCP; 5) patient recommendation(s) of other MEW-EBPs; and 6) creating an action plan and tracking achievement during regular clinic visits. Patients rated the time taken to use MINDSET 2.0 as just right (83.33%) and all patients (100%) agreed that MINDSETPlus was helpful, understandable, trustworthy, promoted careful thinking about management, and would be helpful in future management and communication with HCP.
Conclusions:
MINDSETPlus showed to be a feasible intervention that may strengthen patient’s seizure, medication, and lifestyle SM behaviors. Participants agreed that MINDSETPlus improved the ease, thoroughness, and accuracy in identifying SM issues and establishing a plan for improvement with the guidance and support of their HCPs.
Funding:
This research was funded by a Special Interest Project Grant (5 U48DP006413-04-00 SIP19 – 003) from the Centers for Disease Control and Prevention (Managing Epilepsy Well Collaborating Center).
Translational Research