Abstracts

Rationale: Pediatric epilepsy care is complex and may require the use of multiple and novel antiseizure medications (ASMs) as well as non-pharmacologic interventions. Tertiary care centers with large patient populations have the opportunity of utilizing patient data to optimize patient management. Approximately 30% of children with epilepsy are refractory to ASMs and may require non-pharmacologic interventions to treat seizure burden. The Phoenix Children’s Neurology department developed an electronic patient dashboard to track patient data in hopes of streamlining and enhancing quality improvement outcomes in patient care, particularly in those patients with drug-resistant epilepsy. 

Methods: Real-time data is collected for all patients with an ICD10 G40 diagnosis in the Phoenix Children’s electronic medical record, allowing for real-time monitoring of a wide array of patient information. The data collected includes but is not limited to, the names and quantity of current ASMs, missed clinical follow up appointments, current neurologist and/or epileptologist, seizure trend (better, worse, unchanged, resolved), epilepsy surgical patients, patients on the ketogenic diet, use of folic acid in post-menarche females, rescue medication prescriptions to prevent status epilepticus, and Engel score documentation. These data allows for department overview of compliance, outcomes, quality metrics, and facilitates process improvement through transparency and identifying areas for development.

Results: Utilization of this dashboard has allowed for real time analysis and subsequent intervention on various data points for patients with epilepsy in the Phoenix Children’s health system. Preliminary results have showed an increase in patients with drug-resistant epilepsy being referred to an epileptologist, patients lost to follow up being re-engaged with providers, an increase in the number of patients with active rescue medication prescriptions, and post-menarche female patients receiving folic acid supplementation.

Conclusions: Online dashboards can use real time data to allow for efficient data analysis to optimize patient care and improving health care quality and outcomes. Multiple quality metrics can be implemented to allow for analysis of program inefficiencies, patient specific metrics, and overall trends in patient care. The Phoenix Children’s Neurology department has successfully developed and implemented this dashboard to enhance care and improve outcomes for pediatric patients with epilepsy.

Funding: None