Abstracts

The impact of chronic diseases in the family can result in burden and decrease of the caregiver[apos]s quality of life (QOL). Epilepsy in general and mainly drug those resistant, represents great impact over caregiver[apos]s QOL .
To evaluate and compare QOL and burden over caregivers of patients with temporal lobe epilepsy (TLE) due to mesial temporal sclerosis (MTS) and patient with juvenile myoclonic epilepsy (JME)., We evaluated 50 caregivers of patients with TLE due to MTS and 50 caregivers of patients with JME. We used Brazilian version of Zarit Caregiver Burden Scale (ZCBS) to assess burden over caregivers; this scale provides scores from 0 (no burden) to 88 (maximum burden). QOL was evaluated using the Medical Outcomes Study Inventory 36 [ndash] Item Short-Form Health Survey (SF-36) [ndash] which evaluates different domains of QOL. A socio-demographic questionnaire was applied to characterize the population., The mean age and duration of disease of patient with TLE were respectively 36.42 and 25.6 and for patients with JME were 25.48 and 14.32. There was mild to moderate burden in both groups, with ZCBS average score of 25.5 for the JME group and 30.7 for the TLE. There was a significant association among all domains of SF-36 and the burden over caregivers of patients with JME: general health (p= 0.000); functional capacity (p= 0.003); physical role (p= 0.022); emotional role (p= 0.000); bodily pain (p= 0.025); social aspects (p= 0.020); vitality (p= 0.001); mental health (p=0.000). However in the caregivers of patients with TLE the only associations observed were seen in the domains emotional role (p=0.011), vitality (p=0.008) and mental health (p=0.002), suggesting interference of emotional problems in the daily activities in the caregiver[apos]s life. No difference was observed when comparing the domains of SF-36 Inventory and ZCBS between JME and TLE in the comparison of the groups., Our results show significant compromising in QOL of caregivers of patient with TLE and JME. Caregivers of patients of both groups are similarly burdened. There was no difference in the QOL between the two groups studied., (Supported by [underline]FAPESP[/underline] (Funda[ccedil][atilde]o de Amparo [agrave] Pesquisa do Estado de S[atilde]o Paulo) and [underline]CAPES[/underline] (Coordena[ccedil][atilde]o de Aperfei[ccedil]oamento de Pessoal de N[iacute]vel Superior)/[underline]CNPq[/underline] (Conselho Nacional de Desenvolvimento Cient[iacute]fico e Tecnol[oacute]gico).)